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DrThomasMD, Doctor (MD)
Category: Health
Satisfied Customers: 63757
Experience:  Practice Director
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My wife aged 64 has Bulbar ALS diagnosed nearly a year ago.

Resolved Question:

My wife aged 64 has Bulbar ALS diagnosed nearly a year ago. None of her limbs are affected yet, but she has great difficulty in swallowing. The doctor in charge of her (we live in France) wants to put a tube into her stomach through which she can receive nourishment during the night. She is still very active and loves swimming. The doctor has told her that she will not be able to swim once the tube (or valve?) is in place. We have been told of people who have had this proceedure, who can swim wearing some sort of jacket. We would like some ideas on this, so that we can discuss the situation with her doctor.

Thank you
Submitted: 5 years ago.
Category: Health
Expert:  DrThomasMD replied 5 years ago.

how does she eat now
Customer: replied 5 years ago.
Hello, Dr Thomas, what else ca I tell you to help you answer my question?

Expert:  DrThomasMD replied 5 years ago.
see here

and here
these are specific instructions
discuss with the doc in advance

good luck

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