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Hello. Thank you for coming to JustAnswer with your question, and welcome. I'm sorry you have waited such a long time for a response. If you still need assistance, can you answer this:
Do your hand lesions look similar to this?
OK. The picture I sent you is from a patient with discoid lupus.
There is also a form of lupus that actually causes blisters. To confirm the diagnosis. this, your doctor would have to biopsy the lesions. There are also several medications that can be effective for this condition. If your doctor has not considered these, perhaps you could discuss it with him/her.
There is quite a bit of information about this condition, so I will give you the link. I think you can access it without registering for the site, but if not, registration is free. It's a good source for information, though a bit technical. Here's the link:
Bullous Lupus Erythematosus
There are several sections to the article, with work-up and treatment included. You might want to share it with your doctor, but your rheumatologist is most likely familiar with this disorder. Most of the medications that are used have side effects that you would want to discuss with your doctor before proceeding also.
Also, since this most likely a dermal manifestation of the disease process (or even if it is caused by some other condition), it would be good to have this evaluated by a Dermatologist.