If the headaches are similar to the headaches from yout past temporal arteritis then you should have checked other tests such as sed rate and C-reactive protein.
It is very important to rule this out.
Are you tender over one or both temples?
If temporal arteritis then the sed rate is typically very high.
In general there are several potential causes of headaches of course. What part of your head hurts? Is this throbbing in nature, shrp pain, dull pain or other?
It is tender over right temple area (which is the side I had the temporal arteritis on. It is sore to the tuch and aches all the time. The only way this was found was by a byobsy of the temple. It has been bad (sharp pain) and at times evern makes me dizzy.
Well I would advise you to see your doctor tomorrow for this. I would favor that a sed rate be done. If elevated then I don't think you would need another biopsy to confirm the diagnosis. Also take an aspirin as this will help to reduce risk of clot formation. A mildly elevated sed rate would not be diagnostic of temporal arteritis but a very high sed rate plus your history would be very unlikely to be anything else.
If you can't sleep you could be seem aty the ER. They can perform the sed rate and get results back faster and if needed start you on prednisone taper.
Did you have other questions?
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Anthony Bray MD
This isn't something for ER because it has been going on for over 4 years. I have had so many blood test that my arm looks like a pin cushin. Nothing shows on them except that my sugar is a little high (taking medication for that). I have been off the prednisone for about 5 months now. The Doctors that I have been seeing can't answer the question of WAY I am still having the problems.
OK, I see. I had the impression that this had jumped back on you recently as a problem. I didn't realize that this had been ongoing for such a long time.
I would wonder if a medicine like Lyrica might be of some use. This can help with nerve related pain. It works by different mechanism than most. It may have been tried already for all I know. Just a thought...
I haven't tried that bt will ask my doctor about it. I am on other medications and want to make sure that it will not interfer with any of them. Is there anyother test that might show the cause?
Well a sinus growth might cause such a long stanging headache. A sinus CT would show that if that were the cauuse. An MRA is an angiogram using MRI technology which highlights the vessels . If you had abnormal tapering then a vasculitis might be indicated. This would show other vascular abnomalities such as an AV malformation (artery grows directly to a vein) or an aneurism.