I have been having symptoms for around six months. I get symptoms randomly. Sometimes several times a day, sometimes not for a couple of days. I have not seen a doctor about this, only the numbness in my face (last summer) when they did a blood test (testing I think for some kind of mineral deficiency) and nothing showed up. Since at that point it didn;t seem to be getting worse, i didn;t do anything about it then. But have gradually been subject to more of the pain in my fingers and toes, and along the backs of my hands and feet.
No other previous symptom apart from fatigue (but i am very busy with job, 4 kids etc) and constipation which especially when I am very tired, results in crippling stomach ache which then seems to resolve itself with rest.