8/22 went to ER @ 11:30PM awakened by sharp pain in testicle and upper right flank/back(right side) about 4 inches above waist. Felt nausea but no vomitinga as I remember. Findings blood in urine - no elevated white count. Given pain meds and told to follow up with urologist or pediatrician.
next office day we went to pediatrician who sent us to urologist - who said that his symptoms were classic kidney stone and the large amount of blood in the urine was consistent with kidney stones. Films did not show a kidney stone. But he sent us home with flowmax and pain meds and filter. Caught a couple of blood clots in filter but never saw a stone. Pain lessened. He went back to normal activities.
Pain resumed in same places and we went back to urologist off and on for a week - they did several non contrast CTs in office and x-rays never saw a stone and urine showed no blood from their test( they tested for microscopic amounts - i am assuming it was the stick type test)
After repeated visits to urologist he advised the cystoscope procedure to go in and get the stone with a "basket".
9/11 Cystoscope to look for kidney stone - out patient. That afternoon seemed to be recovering nicely even able to stand up and play video games. That night went to ER because of extreme excruciating pain and difficulty urinating - the pain was unremitting for at least three hours and was finally helped a bit by Dilaudid. They did a CT scan that night no contrast. They admitted him to hospital about 5:00AM from ER. Blood in urine visible to eye.
Urologist said it was unusual but that his kidney had probably reacted to the cystoscopic procedure.
No abdominal ultra sound.
9/14 the CT was done with intravenous contrast as far as I know - that's what they said and he was warned he would feel "hot" with the contrast. I was not in the actual room where they administered the contrast. This CT was the only one with contrast and the only one that was abnormal. This CT showed right kidney to be inflamed and that the inflamation was creating a blockage. Urologist advised a stent from kidney to help it drain. This created more pain and agony.
9/18 After a few days the stent was removed and he was much better for several days.
9/26 He had gone back to school and played football. He had some pain in those two areas over the weekend but nothing severe. Wen to school on Monday and football practice started having severe pain again early Tues AM
9/30 and we went to another urologist. No blood in urine - I don't know the test but it was done in the office lab and gave percentages etc. not just a look under the microscope. normal white count too. This doctor after reviewing everything said he did not think my son ever had a kidney stone and that he had march hematuria and the pain he now felt was from the two procedures. He ordered the isotopic renal scan.
10/1 after a shower at night his pain in the right testicle was so sharp and horrible he described it as feeling like lightening. I still had pain meds so I gave him some and he was finally able to go to sleep
10/2 we went to his pediatrician's office because he was still in agony with the testicle - achy pain in the right flank but not nearly as bad as the kidney. They did CBC and fingerstick - everything normal. His doctor ordered an ultra sound of the testicles. Said they did not seem to move as they should but nothing dramatic. My son told her also about the supplement which is called Havoc and that during the 3 month period when he had taken them he had noticed the testicles seemed to be definitely smaller.
13/3 Woke with some flank pain and did vomit once. Both ultrasound and isotopic renal scan were normal His right kidney was found to be a little smaller than the left. Kidney function was 43 on rt. and 57 on left. No blockage shown. This day he had more flank pain than testicular but not severe. In fact he went to school for a few hours.
My question where do we go from here? Are we missing something deadly? As long as he does nothing and avoids showers (which he won't do of course) he seems to have only a little pain and achiness or none at all.