Greetings,Customer Thank you for submitting your question(s) to JustAnswer.com in the category of HEALTH. My name isXXXXX I am a licensed physician, trained throughout Internship, Residency/Fellowship at the Mayo Clinic in Rochester, MN in the specialties of Internal Medicine and Critical Care.
When you mention that your physicians won't place you on MG medications, are you speaking of all possible medications or just the Acetylcholine Esterase Inhibitors (AChEi)? Have they considered other modalities of treatment with immune modulation agents like prednisone, azathioprine, cyclosporine, and mycophenolate mofetil. Sometimes, other agents such as a monthly pulse cyclophosphamide and tacrolimus may be considered.
Have you been presented with IVIG (intravenous immune globulin) or plasmapheresis as options? What about having a thymectomy? (This thymectomy approach is controversial, not terribly well studied, and can take years to see benefits if at all).
I will get back to you once I know a little more information requested herein. Thank you for asking us here at JustAnswer.com.
Aside from the acetylcholine esterase inhibitors, other immune modulating medications, plasmapheresis, and IVIG (I agree, thymectomy is not an ideal solution), this is about the extent of our treatment repertoire.
I am sure you have already been there online, but the Myasthenia Gravis Foundation, UK website offers a great number of resources and outlets of information:
I hope this information is helpful. I strongly encourage you to have another conversation with your specialist on options available, arming yourself with some of the information amassed and perhaps attempting to get to the bottom of the low blood pressures, which is a whole new issue altogether.
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