You are absolutely correct.....
Unfortunately, if all the doctors you have mentioned, including the Ophthalmology Professors at Duke can't figure out what is going on, then -- I'm sorry to say -- your issues are beyond the reach of modern ophthalmology.
The good news? By saying this a lot of bad diseases have been ruled out.
The bad news? You are still suffering.
I bet you have heard this before but...at this point your only option is dark glasses
. Not a very satisfactory solution to a complex problem, I'd admit. :(
Maybe, in the coming years, the cause of your severe photophobia
will become manifest and something can be done to cure you. Until such time, however, you only recourse, from where I am standing, is to take steps to limit your symptoms.
I realize that this was not the answer you were hoping to hear but it would be unfair to you and unprofessional of me were I provide you with anything less than truthful and honest information.
Surely, you prefer that I tell the truth rather than what you wish to hear. Because it reflects very poorly on me unless you press one of the top three feedback choices, keep this in mind when rating my answer and please do not punish me for being honest. I understand that this may not be easy to hear, and I empathize.
Even though my answer was not quite what you were hoping for, please understand that my priority was to provide you with the most honest information. With that in consideration, I hope that you found my answer useful. Please click the excellent feedback button so that I can receive credit for my efforts.