Are you available to chat in a couple of minutes?
yes, I am sitting at the computer now- Becky! It is a complicated question,
Yes....well to get started...Lipoflow seems to be a viable instrument and helps some people. It is not universally available, so you would have to seek out an ophthalmologist in your area who has committed to the equipment........as for your primary question....your symtoms are consistent with Sjogrens Syndrome. please revied this Mayo webpage......I will wait for you to come back with follow-up questions....http://www.mayoclinic.com/health/sjogrens-syndrome/DS00147
About five years ago I had blood test for Sjogrens syndrome, RA, lupus and various other blood test, which all showed negative. Should I have these test repeated? I have all symptoms described in the Mayo article. Which drug do you think is the most effective and how effective is it?
Right, even though you had an earlier negative work-up, disease progesses evolve over time. It's time for you get re-evaluated by rheumatology. Do that first. Regarding the proper medication....that is in the realm of the rheumatologist. They are very experienced with management of patients like you. ...please get a tube of Lacrilube ophthalment ointment to put inside your lids at bedtime...that should aid in your sleeping comfort. Is there anything else I might answer for you?
The fatigue is overwhelming at times, any suggestions? also would you pursue the Lipiflow treatments ( not covered by insurance and cost $1,600) or wait to see a rheumatologist? Becky
Becky....please wait on your primary work up before going for the Lipoflow. As for the fatigue.....ask the rheumatologist to consider chronic fatigue syndrome as part of your evaluation...it fits....and best wishes Becky....you've got a lot to deal with. I'm glad I could give you some useful hints. You can always direct other questions to me down the road if you think I can help further.
You helped me immensely, I wish you lived in Dallas, and I would become one of your patients! Sincerely XXXXX XXXXX
PS- will keep you updated- Becky
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