Hi. I'm online and happy to answer your question today.
I am a retina specialist and treat this issue very frequently. A "retinal wrinkle" usually refers to an epiretinal membrane, also called macular pucker.
Was the doctor who told you that you have this condition an ophthalmologist (eye MD)?
Do you have any medical problems or take any medication?
Good Afternoon. Welcome to chat
I do not have any other medical problems, per se. I take 0.1 mg of thyroid medication and 30 mg of cymbalta.
Yes, the doctor is an opthalmologist, apparently a retinal specialist
He's talking about injection of a new drug and has ordered it for me
I would like to know more about this and cannot remember the name of it.
Afibercept is the new drug out there ( it is in the same class as lucentis and avastin) but these medications are not used for retinal wrinkles.....and a retina specialist like myself would have this drug on hand in the office....
do you think your condition might be called choroidal neovascular membrane or age related macular degeneration and not retinal wrinkling?
Are you still there?
He does not refer to it as ARMD, and the original diagnosis was retinal wrinkle. It is the fluid behind the retina that has dried and formed a membrane, causing distortion of my vision. I am now seeing double and triple objects and having a harder time reading what used to be no problem
Ok. Well, there is no injection or medication that can be used to treat this issue. T
The medication is a brand new release and just started being used in January 2013. He is waiting for a special freezer from the manufacturer of the drug before he can actually receive the medication
Treatment requires a vitrectomy and membrane peel......a fairly extensive eye surgery only done by retina specialists.
Apparently this medication is a $4000, one-time per eye per lifetime, procedure
Yes. I know about that drug and currently it is not, in my opinion, as good as the surgery.
Would you then recommend that I seek a second opinion?
What is the drug called?
what is a choroidal neovascular membrane?
That is a form of macular degeneration.
He is actually seeing the membrane attached to the retina
yes. It can be seen with a contact lens put on your eye, with a computer test called OCT and also with a fluorescein angiogram. It is pretty easy to see....
I believe I had the test on the computer
What about a second opinion at this point
he did mention another condition . .. guess I'd better find out what that might be
It never hurts to get a second opinion. I do not recommend treatment of an epiretinal membrane until the patients vision is limited to the 20/40 level or worse, except in rare cases.
My vision deteriorated significantly in the six weeks between appointments.
Did he tell you the name of the new drug he wanted to use and why he feels you would do better with this then the standard surgery?
That does not sound like an epiretinal membrane to me then.....it doesn't not change that fast usually.
I believe it starts with a "j" - forgot to write it down.
Are you sure this doc is an ophthalmologist? At the very least he doesn't sound like a retina specialist to me.
I've been seeing him since last fall, and he's been waiting for this drug to become approved. Since it's success rate is only 25%, I would wonder.
He is the retinal specialist in this eye group I see. I'm considering a second opinion with another local doctor or heading to Jules-Stein eye center at UCLA.
You will get fantastic care at Jules Stine. For a Medical Center in California, there are not bad (Being from Harvard, I just had to throw that little dig in...sorry. I couldn't help myself :)
Do you know any California retina specialists you would recommend. I live between Stanford and UCLA, but those are the only ones I know about.
Either retina department with give you the best possible care
Harvard . . . good place. Maybe you could do the surgery?
It is just not clear to me what this doc is thinking about right now......
Harvard is pretty good....but, by JA policy, I'm not allowed to recruit patients from this site. Never fear, you will be just fine at either Stanford or Jules Stine.
And Boston is Terrible this time of year :)
I'd better clarify that he just doesn't want to use me as a test
that would be my thought.......first of all, your symptoms don't seem to match your diagnosis, especially with the rapid decrease in vision. Nor does waiting for some drug to come in make sense to me either. But, I'
I've only be doing this for 21 years, so I'll admit I don't know everything....
I'm glad you came online to learn more about what is going on....even if we have not been able to pin things down exactly at this point.
Is there anything else you would like to discuss at this point or have all your questions been answered to your satisfaction?
I guess that you have stepped away from your computer.
I hope this information was helpful for you. But I do work for tips so I want to make sure you are happy with me before rating me. If you have another question on this or a related issue feel free to fire away. And please let me know if the rating system gives you any troubles. Thanks in advance, Dr. Rick
I see another retina expert tomorrow...will let you know what he has to say. thanks for the follow up. I never expected that.
this retina specialist said my membrane was too severe, and that he didn't think the injection was appropriate. recommended the surgery solution for my condition. I think I wail take his advice.
Thank you again for your responses.
thank you again.