I have been bounced around from doctor to doctor for years with progressively worse symptoms, even having been told twice to see a psychiatrist. i was diagnosed with mono when i was 20, then again when i was 35. about the time of the 2nd mono, i also had a "possible stroke" which completely took out my balance (took almost a year to be able to walk right, still fall all over the place in yoga class) and my hearing in my right ear. recovered some hearing, but cannot distinguish sounds. about 10 years after that, was diagnosed with fibromyalgia. had a couple of serious episodes which i saw had acupuncture for. the man who did the ap said he could not even find a pulse on me. at this point - about 8 years after that, i have had a lot of progressively worse things happening. i began having a blind spot in my left eye at the beginning of this year. saw an opthamologist in may who said my optic nerve was very swollen. he ordered an mri, then called me and said, nope, didn't see anything. also early in the year, i had what felt like a severe fibro attack, but with some new stuff i hadn't had before. felt like my arms and legs were very swollen (but they were not) and had the sensation like a foot coming back awake after being asleep. had some skin lesions (i forget what they're called) that my dermatologist he could not give a reason for. began having serious pain in my back and neck, and was unable to get out of bed most of the time for about 3 -5 months. after mri, was told i have spinal stenosis, spurs, arthritis, degenerative discs, etc. etc. saw neurosurgeon who said that most of the symptoms i was having - like head pain so severe i could not lay on a pillow or stand for anything to touch my head, the sensation of my eyes rolling around in myhead, numbness in my face, even in my mouth. i went to the ER 5 times in as many weeks with pain and muscle spasms so severe that i had to be helped out of the car and into the hospital. the neurosurgeon told me to see a neurologist to have an eval for MS. saw another opthamologist because vision impairment is getting worse, and he has referred me to a neuro-opthamolgist for possible giant cell arteritis
/polymalgia rheumatica. the referral process and appointment setting process very slow, and it seems my symptoms are worsening. i had pneumonia for 2 months, and am just now getting over it. i never had very good night vision, and now it is almost impossible for me to drive at night. i cannot see at all when walking in the dark. i frequently have the sensation that i am about to fall or faint. am beginning to have difficulty hearing as well. over the past year, my thyroid readings changed every month. i have always had low blood pressure and it got very high and i am now taking lisinopril. i am so confused about all this, who to see, etc.. two of the doctors i have seen have even suggested i see psychiatrists. my family doctor said he knows there is something wrong, he just doesn't know what it is. i don't know where to go now that my symptoms seem to be worsening. any suggestions?