Hello, Welcome to Pearl.com
Are you available for chat now?
Having gone through your detailed information, it looks like you have been experiencing symptoms of Cluster headache.
YEs my research says the same
In that case you must be well aware of its idiopathic nature ( exact cause is not known though various mechanisms have been put forth) and its characteristic symptoms such as one sided severe headache with or without associated symptoms such as running nose/watering of eye/sometimes drooping of lid.
It matches Cluster but I do no have to walk around the room and pace. I sit with ice until it subsides. If Coulter will they not at some point go into remission?
Pain is a very subjective symptom and its tolerence can vary from person to person. Probably in your case the intensity is not to the level that you need to pace up and down or there is a possibility that your tolerence level is probably better than others. Nevertheless headache is something which is not only difficult to bear but difficult to treat too. Headache has many causes and can get referred from diseases of surrounding structures such as eyes/nose/sinuses/ear/brain/neck.
Since you have been evaluated thoroughly ( including MRI and X-rays), the chances of headache being due to cluster headache seems more.
Migraine can also cause such headaches but they are not so repititive ( multiple episodes in the same day).
The swelling on the left side of my neck makes me think I have some type of neck injury that is part of the problem. The last time I went through this when it stopped the swelling went away. This time it is back with the headaches. Been toi Chiro and Massage but it does not do much. I suppose it may have to run its course but it sure is debilitating.
I can understand your agony and truly wish you recover soon. You have certainly noted an improtant finding -that of neck injury in the past along with swelling of the neck. Though I cannot be sure in your case but musculo-skeletal injuries can also cause referred pain.