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My questions were if these symptoms sound like a form of atypical trigeminal neuralgia or if not what could they be? If so could they have been caused by the eye surgery 10 years ago and if so what can be done now.
I have daily pain/pressure between and behind my eyes which varies in severity. This will frequently lead to a much more severe headache that doesn't respond to anything but high levels of painkillers. My last ER visit lasted 6 hours and I had 8mg of Dilaudid, injections of anti-nausea drugs, benadryl and Toradol. 8 hours after returning home the headache was back at almost the same levels.
I wouldn't say it comes and goes completely. The pain between my eyes is almost always constant but varies from moderately uncomfortable to incredibly painful. Usually there is swelling involved as well.
The severe attacks are intermittent and usually occur 1-2 times per week and last from a few hours to a couple of days. Sometimes these are relieved by the triptan drugs but other times not.
As the years have passed this happens more and more frequently. Another symptom that doctors seem to dismiss is that about 5 years ago when this pain was at its worst I was put on Topomax for migraine prevention. This caused me to lose about 60lbs and I am already a thin peson. Since stopping that treatment I have gained back only 20lbs or so and have trouble maintaining weight.
Nothing yet as this has only recently been mentioned by my new dr. I was on Gabapentin 200mg 3x per day but did not have any reduction of symptoms.
Any comments on the weight loss?
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