Hello and thanks for your question. Are you available to chat?
There is very likely no connection between the epilepsy and the amblyopia, especially if the MRI of the head showed no lesions/masses affecting the eye, optic nerve, or part of the brain affecting vision. The most common reason for amblyopia is a difference in the need for glasses between the two eyes, with the eye that has the larger prescription being the amblyopic one usually. Does that make sense?
yes i am
it does make sense but why for the first time in her life is it diagnosed. I thought this was usually discovered earlier in life.
It usually is. However, if she had recently hit a growth spurt, then her eyes may have changed at that time (prescription-wise) and that could cause this.
We were basically told that there was nothing to do for her other than to have her wear safety lenses primarily to protect her good eye.
I wouldn't shut the book on this yet. It has been recently shown in research studies that in children with dense amblyopia (20/200 and worse like your daughter), even kids as old as 10-12 can have improvement in the vision if it is treated in time.
The opthomologist informed us that the shut off for patching or drops was around 8 to 9 years old and her brain could not be retrained.
That was definitely the party line for the past several decades, but newer studies have shown that's not necessarily the case in every child. It's the children exactly like your daughter (20/200 vision) and not past the age of 12-13 that sometimes will still respond to treatment.
So I think at least one more opinion is probably the route we need to take.
I absolutely think you should get at least one more opinion. And it wouldn't hurt to make that opinion be with a pediatric ophthalmologist.
Yes, I agree.
Do you have any other questions about this?
We will be seeing a pediatric opthamologist at Darthmouth. Unfortunately he cannot fit her in until late July. Thank you for time doctor. I have no more questions at this time. Goodbye.
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My opinion is solely informative and does not constitute a formal medical opinion or recommendation. For a formal medical opinion and/or recommendation you must see an eye doctor.