I am sorry to hear about your problem.
Non genetic retinal dystrophy can be a tough condition to treat.
I would suggest the following centers with extensive experience in Australia
Center for Eye Health,
Rupert Myers Building (M15) South WingBarker St, Gate 14The University of New South WalesKensington NSW 2052
1300 421 960
02 8115 0777
Another good resource that can point you in the right direction would be
Toll Free Number
1800 999 870 Between the hours of 9 a.m. and 5.p.m. Monday to Friday EST
I hope this information is useful,Do remember to accept the answer, please get back after accepting for any clarifications,