I must admit that the best trained person to evaluate and treat you for your condition is a neuro-ophthalmologist
. While I understand how frustrating it can be for you not to know what is going on the good news is that your complete exam and extensive workup has eliminated a large number of things that could be causing your symptoms....many of then being bad things....
The pale optic nerve suggests that your vision loss is due to neurological issues, damage to the optic nerve etc. The differential diagnosis tree for this is rather straight forward and I am sure that your doctor has fully explored all these possibilities.
So. What can you do now? You might want to travel to a University Teaching Program where a team of ophthalmology Professors can evaluate your condition from the perspective of a their individual sub-specialties and areas of research interest. This team approach might just get to the bottom of what is causing your physical findings and continued pain.
You can find an ophthalmology program near you by searching the internet, asking friends and family or consulting with your neuro-ophthalmologist.
Does this make sense to you?
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