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Is there a lesion on her optic nerve or is the lesion in her orbit and compressing the nerve while it causes proptosis?
MRI reads the following: Impression - abnormal thickening of the optic nerve bilaterally with multiple areas of abnormal t2 signal and the basal ganglia and pons compatible with neurofibromatosis. Small amount of fluid in the mastoid air cells.
There is no mention of lesion(s) on the report
What is the short period of rapid enlargement time period usually.... When does it start to slow in growth also. If she is 3 years old does the growth of this stop by age 10 as stated. If your daughter, when would you consider the chemotherapy - wait and see approach or do as soon as possible.
We are seeing a neurologist at UCLA this Thursday. I have talked with her pediatrician who talked about methotrexate vs. chemotherapy. Surgery has not been discussed.