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It is likely that your grandson has a retinal degenerative condition which can slowly cause worsened vision, either central vision (straight ahead) or peripheral vision (side vision) depending on the type. Most of the childhood retinal eye degeneration that affect central vision in the macular include Stargart disease, Best disease, Juvenile X-link retinoschsis, cone-rod dystrophy among others. The childhood retinal degeneration that affect mostly side vision include retinitis pigmentosa
, which can be due to genetics, metabolic condition or infection of the mother during pregnancy by agents such as rubella. Sickle cell anemia (especially the SC type, seen in blacks) can also cause retinopathy and some degree of retinal degeneration. As with your grandson, I suggest that you encourage visit to the retinal eye doctor as scheduled on a regular basis, especially if there arises a complaint of new eye symptom. In the meantime, I suggest that you consult with his eye doctor to determine if any specific multivitamin supplement including Vitamin A supplements, I-caps or PreserVision caps could be beneficial in slowing the progression of the retinal degeneration. Also, I would like to mention that there are many new developments currently used in the management of retinal degeneration, and having the right retinal eye doctor can make a big difference in outcome. Please, I encourage you to persist in your efforts. Please, ask his eye doctor for the specific name of the retinal eye condition.
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Please note that this answer is for information only. It cannot be substituted for the visit to or the recommendation of your doctor.