Yes, there are drugs that can be used to decrease the need for steroids. Many of these compounds are drugs used in the treatment of cancer and are best monitored by a physician knowledgeable in their use, usually an Oncologist. The oncologist would work closely with your endocrinologist and ophthalmologist
to monitor your wife's progress.
Concerning her proptosis, watering eyes and diplopia
, these issues can be addressed with a staged surgical approach. For right now it is important that she avoid exposure and drying of her cornea with copious use of artificial tears, lubricating ointment and, possibly, taping her eyelids closed when she is sleeping. If needed a temporary tarsorrhaphy
(sewing together the edges of her eyelids) can be done to protect her eyes.
Should she start to have visual field loss or vision impairment from compression of her optic nerve due to orbital engorgement or eye muscle enlargement it would be necessary to quickly decompress her orbit
, usually by removing some bone. I'm sure your wife's ophthalmologist is watching her closely for this possible complication.
Does this make sense to you? Is there anything else I can tell you?