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Hi. I'm online and happy to answer your question today.
are you available to chat?
Do you know, when they did the MRI, did they focus on your orbits and do the scan with and without contrast? Also, what treatments are you getting for the headaches? Is your vision affected in any way?
The MRI was without contrast.
Hi. Good morning
I now have reading (progressive) glasses
My main issue is headaches on the left side of my left eye, and pressure on top of my head when it gets bad
Does this fluid in the orbit seem to have any temporal relationship with the headaches?
Also, do you have any vision problems during this time such as double vision etc?
my vision is not really affected, other than if I wear my reading glasses, it helps a little
It's a pressure in my head, that is affected by anxiety a little....
the pressure gets worse at times for no real reason
my left cheek is starting to tingle and feel a little numb
i feel a constant tension on top of my head
i feel a constant pressure in my left cheek
bright light in my left eye intensifies the pressure
ie. driving at night
when it gets real bad, the tension goes from my left temple all the way over to my right temple
Ok. It sounds like you are having a migraine, but I'm sure you've already been told that :) Let's try to think outside the box for a bit.....
When it comes to this orbital squishy thing I think it would be useful if you could have the volume of your orbits measured when this is actually going on. The easiest way to do this is with an instrument called a hertel exophthalmometer. It measures how far your eyeballs are sticking out past the rim of your bony orbit -- an indirect measure of orbital volume. I would expect there to be a measurable difference between your eyes if you are able to notice squishyness, cheek numbness etc.
ok. and it's only in the left eye, and it's every morning when i wake up
no matter what side i sleep on
The problem I believe you are having is that the squishyness may be transitory so it doesn't show up on exam or MRI ets
once I stand up, the squishiness goes away
then the pressure starts
The other way to measure orbital volume, and see any possible vascular abnormality (which I think may be what is going on) is with an orbital ultrasound, once again at the ophthalmologists office
that would be consistent with a vascular problem...
I've been to 2 ophthalmologists, and they looked me over pretty good and couldn't find anything
Has the squishyness been going on for years like the headaches, or is it kinda new?
the pressure has been centered around my left eye the entire time
and it's constant, and getting worse
Well, if it was something "bad" it would have gotten a lot worse over the course of years. Vascular problems don't stay the same over that length of time
my general dr. wants me to go see a specialist
it's slowly getting worse
when you say vascular problems, what exactly are you referring to?
That is a good idea. Hard to pick which specialist. I would lean toward an orbital surgeon or maybe an ENT that specializes in facial/orbit problems. One good though would be to go to a University setting where they have teams of specialists available down every hall
an aneurysm, or dilated, leaking vein. Vascular tumors etc
an MRI without contrast could miss this in the orbit, especially if they were focusing on your brain looking for causes of a headaceh
so you think i should get an mri with contrast
Are you near a major University? Mayo clinic in Rochester Mn would be a good choice, so would some of the Univ of Ca system schools......
with a focus on the orbits.
i'm in northern va
Well, lots of good University programs on the East coast......
I was thinking about going back to the first neuologist i've seen
If you liked her, that is an excellent idea
my insurance has been a pain about getting mris
Ya, they are a pox on society
could a vascular issue around my left eye, fix itself over time?
or would it continue to get worse?
you just need a doc who will think outside the box for a bit. If all this comes up negative then I would feel comfortable blaming it on a migraine varient.....
No. It stuff like that doesn't fix itself, and yes, it usually continues to get worse
I feel like I'm just going thru the motions with these drs
how would you fix a vascular prob (if that was the issue)?
I can understand what you are saying. At least you are smart enough to look for other answers/options
it makes as good sense as anything I heard so far
with orbital surgery....not an endeavor to undertake lightly
I was also in a car accident a few years ago, and got pretty bad whiplash on my upper back
could a pinched nerve cause these symptoms?
the squishiness in my eye, makes me think no
that can cause problem with the carotid artery, but if that was a problem years ago you would be in very bad shape now.....so most likely not associated.
nope. you are right on that count
nerves aren't squishy...and they really can't get pinched in the orbit
if one was pinched in the middle of my back, could that cause pain in my face?
I'm grasping here :)
not sure. That is more of a question for a neurologist
just trying to get an expert opinion
Well, at least you have some ideas on where to go now.....
you have been a big help.....tks.... you think i should go back to the ophthamologist first and have them do that test?
or go back to the neurologist
and one last question
could anxiety cause my issues?>
try the neurologist. If you go to the ophthalmologist you should discuss the issue with her first and say you want to come in ASAP one morning when you are having symptoms to have your eyes measured with the hertel.....
anxiety seems to make the pressure worse - but even when I'm having a ball, laughing, the pressure is bad
the squishiness seems to go away in about 10 mins after standing up, then my cheek feels wierd, numbing sensation
anxiety can make a lot of things worse, but before we blame this entire thing on that, or a migraine, I think it would be useful to rule out some of the things we've discussed here this mornign
ok, sounds good, the neurologist it is
numbing on cheek would go along with increased orbital volume as the nerve that serves the feeling in the cheek goes through the bottom of your orbit
and I'll go from there....this is getting pretty anoying
I hope things work out for you. Best of luck.
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and the anxiety seems to be cause by me worrying about the pressure in my head
not the other way arond
I can believe that.
Drop me a note, you can do that for free by requesting me or just adding it to this question, even after you "accept" the answer, and let me know what you find out if you don't mind
ok, thanks again for your help.......can i save this chat?
yes, you can print it out, and I believe you can copy/paste it into MS word etc. Not sure how else you save it....I've never been on your side of the screen :)
ok, I figured it out - thanks again for your help, and have a good one!
how do you save it incase others ask me?
so select all the text, and copy
then open word, and paste
cool. thanks. Take care. It's now safe to push that pretty green button ;o)
I will tell others who ask
My pleasure Rob.