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Hello and thank you for your question.
It sounds as though you've been frustrated in your attempts to get your grandson's eye condition diagnosed and treated. The lack of a lesion on MRI is a good thing, but only rules out one cause of his vision loss. There can be other problems such as in-born optic nerve problems or an optic nerve dystrophy that can be causing his vision loss.
Given the fact that he's been to other eye doctors that have not been able to diagnose his condition, I would recommend that you make an appointment for him to see a sub-specialist. A pediatric ophthalmologist would be my first choice, followed by a neuro-ophthalmologist.
The best place to find both of these sub-specialists would be an academic medical center in a larger city.
Does that help answer your question?
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My opinion is solely informative and does not constitute a formal medical opinion or recommendation. For a formal medical opinion and/or recommendation you must be examined by your doctor.