Are you referring to white changes in the gray matter of your brain? What's the ophthalmologist's diagnosis? Have you seen a neurologist?
Tests for diseases such as Sarcoidosis (Lysozyme, Angiotensin converting enzyme, chest xrays), Lyme disease (Lyme blood titer), Bechet's disease (HLA haplotype), Systemic Lupus Erythematosis (ANA), further workup for MS (spinal tap).
A fluorescein angiogram is a study where dye is injected into an IV and pictures of your retina are taken as the dye flows through the blood vessels of the retina. This is something that can be done to further characterize the inflammation in the back of the eye.
Does this address your concern?
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The E antibody is an Rh-incompatibility issue. It's existence has implications for future children, usually not for the mother. It's existence would not account for your problems in your brain, your eye, and your joints.
For sarcoidosis, the blood test for lysozyme is also a test that should be done, as well as a chest xray to evaluate for sarcoidosis. Were either of these performed?
In addition, Behcet's disease can cause this spectrum of problems. Do you have a history of oral and/or genital ulcers? Was a HLA haplotype blood test done, do you know?
Im not sure on the test for Bechets, but no ulcers. I do get lumps on the front of my lower shins.
What kind of specialist should I ask to be referred to from my opthamologist. I am scared and feel like non of my doctors know or care whats wrong with me. I have very blurry vision and pressure in my left eye.
Seeing a respirologist but not until end of september. Chest xray done and was normal. Ace test done, normal but on high side.