Thank you for the additional information.
Your son has a condition called aniridia
. This is a genetic disorder that results in poor develop of the eye structures, namely little or no iris tissue. In addition to the iris problems, there is often poor development of the retina with the possibility of poor vision.
In the sporadic form of aniridia, where there is no family history, there is a association with the WAGR syndrome. WAGR stands for:
W=Wilms tumor (kind of kidney tumor)
A=aniridia (maldevelopment of the eye tissue)
A person with aniridia does not automatically have the other problems, but it is important to check for the others. As your grandson is seen by other doctors and under goes screening test, you will know more how serious the aniridia is and if he has the WAGR syndrome or not.
Here is a website regarding aniridia and WAGR. http://www.wagr.org/aniridiavision.htmlPlease remember to press the accept button so I can receive credit for assisting you.
Edited by Dr. James on 4/9/2010 at 3:53 AM EST