What's your vision?
Are both eyes involved?
What's the opinion of your ophthalmologist?
Could you send me your fundus or retina photos?
Perhaps autoimmune, but no success with pred.
May be CRR, but no cancer found.
not Lyme disease
Negative for antibodies
Had one reaction to to a 22kD... from UC DavisI stopped driving 2006
Aches/Pains from arthritis. The 80mg Pred caused two hip replacements and should er surgery is on the way. Also a three week stay in hospital for steriod myopathy. The pains in my eyes are intermittent and very sharp and painful, usually short duration. When pain lasts longer it feels more like the aftermath of a punch.
I have ringing in my ears 100% of the time. But doctors have found no problems.
I did take 400mg plaquenil for 3 years , the Aralen 500 mg for another three years. At that time doctors did not agree on diagnosis of lupus and fibromyalgia.
There is no RPE in my family.
Tonight for the first time, I am seeing double.
Your retinopathy may be related to some autoimmune process. Autoimmune retinopathies more commonly occur as paraneoplastic syndromes and less commonly as distinct autoimmune disorders. In those disorders in which the retina is involved CAR anti-bodies are found. Since no anti-bodies were found in your case, the diagnosis is not confirmed. Rods and cones both can be involved. Since, you have constricted fields rods seem to be involved. Patients with rod involvement have difficulty seeing in dim lighting, prolonged dark adaptation and peripheral field vision loss. The most common cancers associated with retinopathy include lung cancer, gynaecological cancer, breast cancer, melanoma, lymphoma etc. In most cases of cancer related retinopathy vision loss can occur before the cancer becomes apparent. However, it is not possible for me to tell you more as this much of information is not sufficient for me. You need to discuss it with the treating ophthalmologist who knows a lot more about you. Thanks and best wishes.
If you were me what eye institute would you try to go to.
You have already been to one of the best hospitals in the world like Mayo Clinic. Still, if you want another opinion you can go to Wills Eye Hospital in Philadelphia. It is very reputed and arguably the best eye hospital in the world. You can follow this link - www.willseye.org I hope, it helps. Thanks.
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