Will try to help. Could you answer some information?
1. vision in the right eye?
2. vision in the left eye?
3. nystagmus since birth?
4. the surgery you had, was is on the eye musles?
5. any other eye surgery beside eye muscle surgery, if applicable?
6. any neurological problems like cancer, tumor, stroke, multiple sclerosis?
Another question you may or may not know? But will help me some.
Do you happen to know if you are color blind?
If you've been tested, was it relatively normal?
Are you there?
It seems to me that you have congenital nystagmus. Most patients with this have fairly good vision despite the eye movement. There is a position called the "null postition" that the eye prefer to be in to minimize the eye movement. You may be regressing with a new null position, thus causing you to rotate your head position to minimize the eye movement. This is usually done unconsciousely. As for the TMJ and the left ear trouble, this is unusal presentation for what I've described above. It's possible that these are two separte things and the jaw symptoms and the equilizing issue maybe due to compensatory reasons. I'd recommmend an ophthalmology evaluation. I don't feel you are going to lose your eye. I think a good eye exam will rest all your fears.