my 3 girls are having echocardiograms today. they think they have left ventrical hypertrophy. are there certain questions I should be asking the doctor after the echo?
Person's Gender: Female
Person's Age: 44
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All 3 are having them?
How old are they?
Do they have hypertension?
we have identical twins that are 9 -- only one is showing LVH the other has some sort of funky ekg reading.
our 12 year old also has this LVH and a funky ekg. Our 18 year old son died in late november from a cardic arrest. He had been diagnosed with WPW when he was born but never was on meds or had any problems. well until he died!
no hypertension that we know of? there blood pressure was fine last week when we went I think?
Oh, I'm so sorry about your son.
That is horrible.
How can I help you with all of this?
after our son died they recommended our girls get ekg's -- that was last week - totally not expecting to hear anything other that they are fine. So when they said they want to do further testing well..... so today is the echo I am wondering are there certain questions I should be asking? what are they going to be looking at? I know the pedatric cardiologist wants to send our 2 girls to an EP doctor. Now I am kind of freaking out -- they have been normal, crazy, drama queens since they were born, are there things I should be looking for?
When you have a child that has sudden death from a likely cardiac cause, you definitely worry about the other siblings.
Especially since there is evidence of something on EKG for the girls. I would ask specifically about the cause of the LVH and if they think it is something called HOCM. Hypertrophic obstructive cardiomyopathy. This is a common cause of sudden death and may have been present in your son. This can be seen on echo and you should ask about this.
I also think you should definitely see the EP doctor. They should be checked thoroughly for any potential arrhythmia and the EP doctor is the best for this. You should ask about WPW in the girls and any other potential problem. Also, ask if they need ICDs to prevent sudden cardiac death.
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