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FamilyPhysician, MD, MBA
Category: General
Satisfied Customers: 12816
Experience:  Primary care physician for transplant patients
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I am about to be screened for a lung transplant at Duke. What

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I am about to be screened for a lung transplant at Duke. What should I do to prepare myself prior to and after?
Submitted: 4 years ago.
Category: Organ Transplantation
Expert:  FamilyPhysician replied 4 years ago.
Thank you for your question:

You should have a COMPLETE list of any medications, vitamins, supplements and over-the-counter medications you take

You would want to write down any questions you have that you want the doctor to answer - when you are at an appointment, your mind will go blank and you will forget everything you wanted to ask

Take someone with you - husband/wife, son/daughter or friend. It is better for 2 people to hear the answers, so that you don't forget what you were told

Have copies of your medical records (if your doctor did not already send copies to the physician) and recent tests results so that they have an idea where things stand.
Customer: replied 4 years ago.
That is a generic answer.
Expert:  FamilyPhysician replied 4 years ago.
I'm sorry that you felt my answer was "generic". Is there something more specific that you needed?
Expert:  FamilyPhysician replied 4 years ago.
I see that you had opened another question with your reply: I have consolidated the two questions into one to make it easier for everyone:

I am a 67 yr. old female that was in excellent condition up until 1 month ago. I have had IPF for almost five years. I have never taken any medicine other than hormonal but have been off that since 14 years ago. I am 5'5" and weigh 160 lbs.
Now with all that being said what type of diet do you recommend as I was told I needed to lose 15 lbs. I am basically sedentary due to my oxygen level has dropped drastically. Currently I am on 8 Liters. My screening appointment at Duke will be July 9, 2012.
Another question is how long do transplant patients live? I have a great outlook - have come to terms but I haven't seen anywhere the mortality rates for lung transplants.

Generally, for weight loss, you would want to have a balanced healthy diet that was not particular high in fat or sugar. Your best option would be to have your personal physician arrange an appointment with a local dietitian. By having a personalized consultation, you can develop an eating plan that meets your nutritional needs, does not aggravate any medical conditions you have, and can be customized to your personal likes and dislikes. In general terms, I recommend a diet similar to a diabetic diet for most patients since this is an easily understood and nutritionally balanced diet.

As for survival - there are SO many different variables that influence survival including age, other medical conditions (diabetes, heart disease, liver disease etc). One of my patients is now about 3 1/2 years out from his lung transplant without a single episode of rejection or need for repeat hospitalization.

The transplant team at Duke can give you details on their survival data and give you some indication of your prognosis after they review your complete medical records, physical examination and test results.
Expert:  FamilyPhysician replied 4 years ago.
Here is some data from Duke on survival and wait times
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